Lillian Wilson
When Sarah was 26 weeks pregnant, she and husband, Jeremy learned that their unborn baby had a congenital heart defect: Tetralogy of Fallot with Pulmonary Atresia. A great deal of research led Sarah and Jeremy to SSM Health Cardinal Glennon Children’s Hospital and to SLUCare cardiothoracic surgeon, Dr. Charles Huddleston. Coincidentally, Jeremy was followed at…
Kaylee Long
“On March 12, 2012, Kaylee Ann Long blessed this world,” states her mother Sheila. “She was born healthy and normal and was a much easier birth than her brother Rylan.” Kaylee progressed normally up until her nine month wellness checkup, when it was discovered that her growth had plateaued, which caused them concern. “We noticed…
Henry Walker
Henry’s mother Leticia was at a routine 20-week ultrasound when her obstetrician informed her that she had abnormally low amount of amniotic fluid, and that her growing baby’s kidneys and bladder were significantly inflamed. She was quickly referred from her doctor’s office in Carbondale, IL to the St. Louis Fetal Care Institute at SSM Health…
Ben Smith
When Benjamin was born in 2015 – six weeks early – his parents Kate and Clay were not prepared for the host of scary diagnoses that immediately followed. Ben has a clinical diagnosis of CHARGE Syndrome, a complex genetic syndrome that affects 1 in 10,000 children and often causes life-threatening birth defects. In Ben’s case,…
Rylan Long
Rylan Carter Long was born on October 20, 2009, healthy and as normal as could be, and all was well until he was two years old. Rylan had been sick, with a poor appetite, lethargic and wanting only to drink fluids. He would wake long enough to have his diaper changed and drink some juice,…